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Thank You from the Irish Hospice Foundation

November 19, 2014

hospice-logo-vector-final-outlinesWe often hear it said that ‘children are our future’ and in an ideal world every parent should see their child grow up and plan for their future as an adult. Ideally no parent should have to bear the heartache of saying goodbye to a son or daughter, and watch a little life diminish too soon.

The reality is that in Ireland today there are an estimated 1,400 children living with life limiting illness. 350 children die each year. The loss of a child is a nightmare that no parent should endure alone, and the Irish Hospice Foundation is committed to supporting these sick children and their families in this often harrowing journey.

 

Support

Over the past four years Early Childhood Ireland (ECI) raised €976,647 to support the Irish Hospice Foundation’s Hospice Home Care for Children Programme – money that has helped to transform end of life for families across the country.

This was done by people like you who held Pyjama Day events in your childcare centres, parents who dressed their children up in their cosy bedtime clothes and sent them off to school or crèche. Even staff got wholeheartedly involved and donned their nightwear too.

This phenomenal amount of money has provided a huge amount of support to the service, which is operated in partnership with the Health Service Executive. Through this money we have been able to fund five of the eight Children’s Outreach Nurses throughout Ireland who provide support to families caring for their seriously ill child at home.

The money has also helped to fund Ireland’s first Consultant Paediatrician with a special interest in Paediatric Palliative Care, Dr. Mary Devins, who is based in Our Lady’s Children’s Hospital, Crumlin.

 

Having a sick child spend their last days at home is the wish of most parents; however, currently just 11% of children die at home. With the work of the Outreach Nurses we are hoping to change this and support more families to care for the precious child in the familiar home environment.

CEO of the Irish Hospice Foundation Sharon Foley said: “There can be no underestimating the incredible support we have received from ECI and their National Pyjama Day over the last four years. This service is so important to so many people, in many ways it is life changing for the families involved and therefore it is vital that we continue to provide this service across Ireland.”

For more information on our services visit the Irish Hospice Foundation website.

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